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Thursday, July 24, 2008
Cancer Center
Living with and Surviving Cancer

How do I make sure I get good follow-up medical care?

Most cancer survivors leave the care of their cancer doctors or surgeons and return to their primary-care physicians when they reach a specific stage of recovery or the five-year survival mark, depending on the type of diagnosis and treatment. Because they may see a doctor who is unaware of their previous cancer experience or who may know little about it, it is vitally important for survivors to develop a long-term follow-up plan with their cancer doctor before transitioning to a primary-care setting.

This plan should include information about:

  • the cancer diagnosis
  • the treatment
  • potential consequences of the cancer and treatment
  • recommendations for the timing of follow-up visits
  • the kinds of tests that should be performed during the visits

This information helps primary-care physicians understand whether the issues they may deal with are routine or related to a survivor's cancer, in which case it may be appropriate for the survivor to check back in with a cancer doctor. For example, if a survivor has been treated with a chemotherapy such as doxorubicin or with radiation therapy, the plan would note that there is a moderate risk of heart problems.

Each plan should be tailored to the individual, taking into account the cancer itself (its type and stage and its grade and molecular characteristics), the survivor's overall health (including his or her age and any other disorders or syndromes he or she might have), and the treatment (including, timing, dosage, and duration). The plan also might offer tips for staying healthy and preventing recurrences or secondary cancers.

Survivors also need to know their legal rights regarding employment and insurance, and about psychological and support services that might be available to them.

This section has more on guidelines for long-term follow-up care.

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