New Medical Technologies Help Save Teen Swimmer

My daughter was just diagnosed with long qt syndrome and it is a devastating diagnosis and very hard to get your head wrapped around. It doesn't show any sign or symptoms and that is the most scariest part. As you stated that you are an active swimmer and healthy and would have never known. Your story was very touching and I'm glad that they had the defibulator's in place for you and that you are on your way to a full recovery. As you know you have to stop certain sports and we were told not to have her swim or have someone right next to her at all times along with our own defibulator. I would also like to get in contact with all of you to get some information on starting awarness in our area here in Chicago and have defibulator's in all area's and find some research that may help us in this fight. Contact me to offer me some help in these area's.

angie of IL 12:02PM May 15, 2011