As an engaging comic actor, Michael J. Fox has been critically acclaimed for the iconic roles he created in the 1985 film Back to the Future and the hit NBC sitcom Family Ties. But more recently—and to Fox, more important—he has emerged as the nation's leading spokesman for Parkinson's disease, the degenerative disorder of the central nervous system. Through the Michael J. Fox Foundation for Parkinson's Research, Fox, 46, has raised public awareness of the disease and generated $90 million for research. With his support for stem cell therapy, which could potentially lead to a Parkinson's cure, he has also inserted himself into the political debate. It is estimated that over 1.5 million people in the United States have Parkinson's disease. One of them is Fox himself.
Fox spoke recently to documentary producers Bobbie Birleffi and Beverly Kopf. Excerpts:
How is the transition from celebrity to leader?
The celebrity part of my life is hard to separate from anything else. But I think that civic responsibility and a desire to do good, especially when so much good has been done unto you, is natural. And celebrity is not what guides me. I know that people are more likely to listen when I speak. And so I take that as a privilege and a great responsibility. It hasn't gotten in your way?
No. It's like, you know, "You're short." Yes, I am short, so now what? That's not going to change. So if you're waiting for that to change, it's not going to happen. So let's move on. Talk about your decision to disclose that you have Parkinson's disease.
I kept my diagnosis a secret from everyone except my closest family and some key business people. But I didn't want it to influence my ability to get work or my audience. I didn't know whether they could laugh at someone they knew was ill. I found out that it didn't, but the symptoms got to the point where people knew something was up, and it was affecting my relationships at work. I couldn't say, "I'm waiting for a pill to kick in," or "That time of day isn't going to work for me." So I disclosed it. And the public reaction was a tsunami of support. How did they demonstrate that support?
When I opened up to people, I also opened up to this community that I had shut myself off from. And once I began to see its challenges, it was this huge experience of identification—talking to people online: "Do you feel that in the morning?" or "Do you find that this reaction is common?" And then I started to [talk] about treatments and cures. I didn't want to be a caped crusader; I'm like, "I'm a song-and-dance man!" But it became clear that people were looking to me. What is your foundation doing and how well is it reaching your goals?
Initially, our war cry was that we were going into business to go out of business. And we were very encouraged. We had information that the possibility was there for cures, or at least transformative therapies. And then we realized that we could in fact build a train, that the technology was there to build a locomotive. But then we started to say we have no tracks, so you have to start to do that. We're pursuing things like biomarkers, definitive ways to diagnose and predict the disease, as well as prophylactic therapies. We're looking at everything from green tea to trophic factors and gene therapy. We're looking at ways to pass the blood-brain barrier and deliver new treatments.
Seven years in, do you feel you're close?
Yeah, I do. You get smarter as you go, and that's good news and bad news. It's good news because you have more information. But you also see where the gaps are that have to be filled. You have to work with biotech and [pharmaceutical companies]. We can come in and de-risk [research] for them. We can say, "We'll pick up the $3 million for that." If you were to say, "Who's in charge of finding a cure for Parkinson's?" as far as we're concerned, that's us. How did you get involved in the controversy with stem cell research?
I was watching President Bush exercise the first veto of his presidency to knock down stem cells, and I just got pissed. I just said, "This isn't right." Polling has demonstrated that Americans support stem cell research. And so I knew that people would be receptive to the message, and again, I knew I was uniquely qualified to deliver it. [In the 2006 midterm elections, Fox endorsed candidates on the basis of their support for stem cell research.] The flak that I ran into, let's face it, did us a huge favor. It turned what might have been a one- or two-day story into something that held the attention of the country for two weeks.