Finding Effective Treatment for Your Chronic Pain

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jeanafishm of IL @ Nov 02, 2009 15:20:28 PM

Diabetes, Ruptured Colon, MRSA, Fibro Myalgia, poor vision, Memory Problems

I have all of the above problems that began once my colon ruptured and I acquired MRSA from the ruptered Colon. The Pain is unbearable most of the time. Yes, I have a "Fist Full" of controlled medications I must take for the excrutinating pain I suffer. I do not believe I will ever completely recover from all of the above. I am very concerned, because my memory is getting very bad. I am 67 and realize it can be authoritice as well. I have two other people who are disabled in our home. I still care for them. I fear that the time is coming that I will be doing good to just wake up soon. The cost of the medications are outrageous. We get Social Security, but by the time we pay the co-pay we have spent close to $700 to $1,ooo monthly. We never have enough money left for the foods we need to eat.

We moved to a smaller apartment, thinking we would save $500 for food monthly. However, the electricity, water, pharmacy, physicians and the fact that I cannot cook often has quickly taken the savings and we rarely can afford the food, plus I am so sick I have trouble preparing it. I worked for fifty years before all of this happened.

Do you have suggestions on how to fix the situation of money and the cost of food, Pharmacy, etc. Everyone is increasing the cost, yet our Social Security does not incerase as much as the escalating cost for what we need. We are not the only family like this. Many others are probably much worse.

I pray for the leaders of our nation to open their eyes to the fact that people like us need help.

Please give me advise on what to do.

Virginia S. Flud of TX @ Aug 15, 2009 04:34:39 AM

BACK TO BASICS

I was in severe chronic pain for 4 years in which I was diagnosed by different doctors with fibromyalgia, restless leg syndrome, depresssion, anxiety.. etc. IT turned out to be in the end,a very simple vitamin B12 Deficiency. Sometimes, things have a simple diagnosis. It isn't always necessary to diagnose with the latest fad.

sam of TX @ Aug 01, 2009 21:42:25 PM

ACUTE PAIN-OPIOID DEPENDANT-HOSPITAL DOES NOT CONTROL PAIN...

I have been on Opioids for over 10 yrs. due to chronic back pain-spinal fusion, etc. I am on Fentanyl patch, Oxy 30mg x2 and Fentynl transmuscal prn/pain among other meds.

I have not been hospitalized during the past 10 yrs other than arthroscopic knee, and a rear-end accident in which my knee was injured.

In Dec. I exp my 1st of several kidney stone attacks. Since then, I've had 2 lithrotripsy's with cyto's, 1 attempted stone removal, 1 ER visit, 1 inpatient with stent insertion. I have encountered horrible problems with the same hospital in regard to pain control. Prior to outpatient surgery, I'm told not to take my pain meds the day of surgery. I now know this is wrong. Coming out of surgery, has been a nightmare. My husband said he could hear me screaming in pain coming down the hallway from the OR. In recovery, the pain is severe, and I'm told the same thing: "we can't give you anything more, or you might stop breathing!" I've acquired all my records, and I was given 1 mg hydromorphone with pain #8 again 1 hr later (following attemp stone removal & stent removal). Sent home with NO pain meds.

ER kidney stone pain: 1 hr in ER b/4 seeing a Dr. in severe pain-given 2 Dilaudid which didn't touch the pain. After admittance-Dilaudid 2 every 2 hrs. IV push which again didn't touch my 8-9 pain. Hospital never gave me my maintenance meds-even though I made them aware I needed them.

Made a complaint to hospital when I came home regarding problem with acute pain and opioid dependant patients and after "investigating" the problem, hospital came to conclusion, that all meds were properly dispensed!! Who or how would I make a complaint, or how are changes made regarding pain control, so that hospitals can be better informed about treating opioid dependent patients?

T Munce of MI @ Jul 26, 2009 21:32:25 PM

Women In Pain Awareness Month

Pa has declared Septetber 2009 as Women In Pain Awareness Month.Ca. also has a recurring Women In Pain Awareness Month each February. Although women have more diseases such as rheumatoid arthritis, regional complex disorder, and fibromyalgia, among others, they tend to have a harder time getting diagnosed and when they do are often under treated.

Women In Pain Awareness Month is an effort to bring attention to this disparity in care.

Thank you.

Carol Jay Levy, B.A., CH.t

author A PAINED LIFE, a chronic pain journey

member, cofounder with Linda Misek-Falkoff, PWPI, Persons With Pain International,

accredited to the U.N. Convention on the Rights of Persons with Disabilities

member U.N. NGO group, Persons With Disabilities

member, ForGrace, WIP (Women In Pain)

carol levy of PA @ Jul 16, 2009 12:17:20 PM

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